Toolkit:

• FPQC Family-Centered Care PAIRED Toolkit (v. March 2021)
• PAIRED Key Driver Diagram
• PAIRED Quick Start Guide (v. Feb 2022)
• 30-60-90 Day Plan Worksheet
• Roadmap for Initiating Skin-to-Skin
• Sample Plan-Do-Study-Act Cycle
• Skin to Skin Care FAQs (as of April 2021)

Data Resources:

• Measurement Grid (v. Feb 2021)
• Data Collection Form
• Skin-to-Skin Log

Resources:

• Nurturing in the NICU (Parent Version)
• Pain Awareness Parent Flyer
• Kangaroo Care Flyer
• Bedside Card Kangaroo and Encircled Care
• Example "Skin to Skin" pamphlet (Joe DiMaggio). An example of a flyer that units can use as a template to produce their own.   
• Example "Kangaroo Mother Care" pamphlet (Holtz Children's Hospital)
• Example Kangaroo Mother Care appointment card (Joe DiMaggio)
• Example "Learning the Value of Skin-to-Skin" Flyer (Health First's Holmes Regional Medical Center)
• A Preemies' Bill of Rights. Describes what care the preemie deserves. Many NICUs have used this over the years and give a copy to all families on admission.   
• The Benefits of Kangaroo Care (Hand to Hold). This blog describes the benefits of Kangaroo care for families.
• Apps for NICU Families
• Kangaroo Care: What is it and why we do it. Maggie, born at 25 weeks, talks to Sunnybrook nurses and doctors about kangaroo care. Video produced by Sunnybrook NICU staff.
• Skin-to-Skin Care in the NICU (The Klarman Family Newborn Intensive Care Unit): Brochure with skin-to-skin instructions. 

Evidence for Skin-to-Skin Literature:

• Effect of Facilitated Tucking Created with Simulated Hands on Physiological Pain Indicators during Venipuncture in Premature Infants 
• Sobreviver (Survive) Project 
• Neonatal Skin-to-Skin Contact - Implications for Learning and Autonomic Nervous System Function in Infants With Congenital Heart Disease 
• Kangaroo Mother Care - A method for protecting high-risk low-birth-weight and premature infants against developmental delay
• Neuroprotective Core Measure 2- Partnering with Families - Effects of a Weighted Maternally-Scented Parental Simulation Device on Premature Infants in Neonatal Intensive Care  
• Parent-Training with Kangaroo Care Impacts Infant Neurophysiological Development & Mother-Infant Neuroendocrine Activity
• The Maternal Experience of Kangaroo Holding 
• The Mood Variation in Mothers of Preterm Infants in Kangaroo Mother Care and Conventional Incubator Care

Handouts:

• Tip Sheet 10 ideas FFC Diversity Disparities (CPQCC) 

Peer-Reviewed Literature:

• CPQCC Baby Monitor Study. This article examines racial and ethnic disparities in NICU care. 
• Health Care Providers’ Perspectives of Providing Culturally Competent Care in the NICU. This article examines the experiences and perceptions of health care providers caring for new immigrant families in the NICU. 
• Parents' and nurses' experiences of partnership in neonatal intensive care units: A qualitative review and meta‐synthesis
• Caring for Indigenous families in the neonatal intensive care unit
• When a common language is missing: Nurse–mother communication in the NICU: A qualitative study

Clinical Guidelines:

• Implementing the New ANA Standard 8: Culturally Congruent Practice. This article records the history of the revised scope and standards and new Standard 8, the reasoning behind this standard and its impact on nursing practice, education, and research.

Evidence-based Literature:

• Family Presence in the NICU: Constraints and Opportunities in the COVID-19 Era (Bainter et al)
• Guidelines for presence of families IPFCC - A Template: This article examines methods for needs identification from the family and patient perspective in perinatal care.
• Bringing Depth and Meaning to Perinatal Quality Improvement by Partnering With Patients: This article also examines methods for needs identification from the family and patient perspective in perinatal care. (PQCNC)
• The Value of Family Advisors as Coleaders in Pediatric Quality Improvement Efforts: A Qualitative Theme Analysis (Ramazani et al)

Policies & Recommendations:

• Kangaroo Mother Care Policy: This is the Holtz Children's Hospital Policy on Kangaroo Mother Care and is an example that other units can utilize to create their own.
• Skin to Skin Care for the Newborn Clinical Guidelines (The Royal Children's Hospital of Melbourne): An evidence-based clinical guideline which provides the benefits criteria and procedure to effectively and safely promote skin to skin care to infant and parents. This is a reference for NICUs to use to develop their own policy/procedure for skin-to-skin care.
• Recommendations for involving the family in the Developmental Care of the NICU baby. J of Perinatology. This article describes the recommendations for assuring that families are involved in the care of their babies with specific policy recommendations.   

Other Resources and Support:

• Family-Integrated Care: This website introduces the concept of Family Integrated Care (FICare) to families and health care providers. FICare is a model that integrates families as partners in the NICU care team and provides a structure that supports the implementation of family-centered care.
• The NICU Parent Network is a collaborative of NICU Support Organizations led by NICU Parent Professionals.  

Resources:

• UCSF NICU: How to do a standing transfer when your baby is on a respirator (Video). A video demonstration of the performance of Skin to Skin Care. They demonstrate how to standing transfer and other items to teach parents. 
• Kangaroo Care for Infants on HFOV (Slides)
• Key Points for Kangaroo Care for Infants on HFOV
• Staff SSC Competency 
• Parent SSC Competency
• Kangaroo Care and Parent Bonding. Hilary Whyte, Professor of Pediatrics, Hospital of Sick Children in Toronto, Canada, speaks about the importance of kangaroo care and integrating parents into the care process. Learn more about the benefits and how to incorporate kangaroo care into your unit.

Care Conference:

• Interdisciplinary Family Conferences to Improve Patient Experience in the Neonatal Intensive Care Unit. This article describes one unit's approach to enhance patient experience through the family care conference. 
• NICU Family Care Conferences (UAMS)
• Family Conferences in the Neonatal Intensive Care Unit: Observation of Communication Dynamics and Contributions. This article describes a pilot study to record and analyze how interdisciplinary NICU clinicians and parents navigate difficult conversations during NICU family conferences. 

Medical Education:

• Audio recordings of consultations with doctors for parents of critically sick babies
• It’s All in the Delivery: Improving Healthcare Starting With a Single Conversation, by Anthony Orsini Orlando, FL: West Essex Press. 2020. All in the Delivery is a book focusing on the art and science of healthcare communication. This is a resource both for antenatal counseling and the complex care conferences.

Antenatal Counseling:

• Counselling and management for anticipated extremely preterm birth. The article proposes using a prognosis-based approach to the management of extremely preterm infants.  A framework for determining the prognosis-based management option(s) to present to parents when initiating the decision-making process is also discussed.    
• Counseling parents at risk of delivery of an extremely premature infant: Differing strategies. This article  explores expert neonatologists’ views on  decision-making processes when deciding whether to resuscitate infants born extremely preterm and their own roles in counseling parents.
• Counselling about the Risk of Preterm Delivery: A Systematic Review. This is a systematic review that discusses the research gap in the area of counselling for preterm delivery risk.