Phone for scheduling the appointment: 813-821-8011

Fax number to fax records: 813-905-8970

Referral Form to be faxed with records

The bone loss due to causes below can be evaluated and treated by our team

1. Osteoporosis/bone loss/low bone mineral density:
   1. Age-related,
   2. Pre-menopausal and postmenopausal,
   3. Pregnancy and lactation-associated osteoporosis (PLO)
   4. Hypogonadism in men,
   5. Other endocrine-related osteoporosis due to Cushing syndrome/disease, hyperparathyroidism, hyperthyroidism, acromegaly, growth hormone deficiency,
   6. Drug-induced bone loss (including but not limited to glucocorticosteroids, check-point inhibitors, aromatase-inhibitors, androgen-deprivation therapy, suppressive thyroid hormone therapy),
   7. Radiation induced bone loss,
   8. Transplantation-related bone loss,
   9. Malnutrition, bariatric surgery related, vitamin D deficiency, etc.
2. Bone loss due to genetic disorders such as Osteogenesis imperfecta, McCune-Albright syndrome, Osteoporosis-pseudoglioma syndrome, cystic fibrosis, hypophosphatasia, Hypophosphatemic nephrolithiasis/osteoporosis-1, Paget’s disease of the bone, vitamin D receptor mutation.
3. Perioperative management of the osteoporosis before and after spinal and orthopedic surgeries.

Osteoporosis screening should be provided based on current recommendations of International Society of Clinical Densitometry (ISCD):

• Women aged 65 and older,
• For post-menopausal women younger than age 65 a bone density test is indicated if they have a risk factor for low bone mass such as:  Low body weight, Prior fracture, High risk medication use, Disease or condition associated with bone loss,
• Women during the menopausal transition with clinical risk factors for fracture, such as low body weight, prior fracture, or high-risk medication use
• Men aged 70 and older,
• For men < 70 years of age a bone density test is indicated if they have a risk factor for low bone mass such as low body weight, prior fracture, or high-risk medication use,
• Adults with a fragility fracture
• Adults with a disease or condition associated with low bone mass or bone loss
• Adults taking medications associated with low bone mass or bone loss,
• Anyone being considered for pharmacologic therapy,
• Anyone being treated, to monitor treatment effect,
• Anyone not receiving therapy in whom evidence of bone loss would lead to treatment,
• Women discontinuing estrogen should be considered for bone density testing according to the indications listed above.

Links:

Osteoporosis foundations:
International osteoporosis foundation: https://www.osteoporosis.foundation/
Bone health and osteoporosis foundation: https://www.bonehealthandosteoporosis.org/ 

Fracture risk calculator, American Bone Heath, Healthy Bones Tampa Bay
https://americanbonehealth.org/hbtb/hbtb-resources/
Bone Registry – coming soon.

Bone Health Fall Prevention Interactive House

Anti-osteoporosis medications support programs links:

Teriparatide (Forteo):  
https://www.forteo.com/savings-and-support
https://simplefill.com/forteo-patient-assistance-programs/
https://www.needymeds.org/drug_list.taf?_function=name&name=Forteo
https://www.alvogenteriparatide.com/savings-program/ 

Abaloparatide (Tymlos):
https://www.tymlos.com/savings-support
https://www.needymeds.org/generic-drug/name/abaloparatide  

Romosozumasb (Evenity):
https://www.evenity.com/evenity-support/evenity-cost 

Denosumab (Prolia):
https://www.amgenassist360.com/patient/prolia-cost-assistance
https://www.proliahcp.com/support-and-access/access-overview

The Rare Bone Disease Alliance, originally created in 2006 as a patient advocacy network and called the Rare Bone Disease Network, has grown into a strong coalition focused on educating medical professionals, expanding research, and assisting patients and communities affected by rare bone diseases.

The Alliance encourages professional, medical and scientific societies to expand their educational programs on rare bone disease and organizes its own meetings and workshops.

Alliance participants include rare bone disease physician and scientific thought leaders, the Rare Bone Disease Patient (RBDPN) organizations and pharmaceutical companies working in the rare bone field.

• Rare Bone Disease Alliance
• American Society for Bone and Mineral Research (ASBMR)
• National Osteoporosis Foundation (NOF)
• Capture the Fracture

Information is available from these Rare Bone Disease Patient Network (RBDPN) organizations:

Fibrous Dysplasia Foundation

International Fibrodysplasia Ossificans Progressiva Association (IFOPA)

The Jansen's Foundation

Lymphangiomatosis & Gorham’s Disease Alliance

Lymphatic Malformation Institute

Melorheostosis Association

The MHE Research Foundation

Osteogenesis Imperfecta Foundation

The Osteopetrosis Society

Soft Bones: The U.S. Hypophosphatasia Foundation

XLH Network

For information contact Charlene Waldman, Rare Bone Disease Alliance Director
waldmancharlene234@gmail.com

The Rare Bone Disease Alliance is a program of The Osteogenesis Imperfecta Foundation
www.oif.org