Birth Defects Surveillance Program
Manuscripts and Publications
Publications
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Marshall, J., Falope, O., Vijayakumar, N., Tanner, J. P., Salemi, J. L. & Kirby, R. S. (April 2020, in press). Family-centered management of birth defects diagnosis and referral in hospital settings in Florida. Maternal Child Health Journal.
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Marshall J, Ramakrishnan R, Slotnick AL, Tanner JP, Salemi JL, Kirby RS. Family-Centered Perinatal Services for Children With Down Syndrome and Their Families in Florida. Journal of obstetric, gynecologic, and neonatal nursing : JOGNN / NAACOG. Jan 2019;48(1):78-89.
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Agopian AJ, Salemi JL, Tanner JP, Kirby RS. Using birth defects surveillance programs for population-based estimation of sibling recurrence risks. Birth defects research. Nov 15 2018;110(19):1383-1387.
Nguyen JE, Salemi JL, Tanner JP, Kirby RS, Sutsko RP, Ashmeade TL, Salihu HM, Drach LL. Survival and healthcare utilization of infants diagnosed with lethal congenital malformations. Journal of perinatology : official journal of the California Perinatal Association. Dec 2018;38(12):1674-1684.
Salemi JL, Rutkowski RE, Tanner JP, Matas J, Kirby RS. Evaluating the impact of expanding the number of diagnosis codes reported in inpatient discharge databases on the counts and rates of birth defects. Journal of the American Medical Informatics Association : JAMIA. Nov 1 2018;25(11):1524-1533.
Salemi JL, Rutkowski RE, Tanner JP, Matas JL, Kirby RS. Identifying Algorithms to Improve the Accuracy of Unverified Diagnosis Codes for Birth Defects. Public health reports (Washington, D.C. : 1974). May/Jun 2018;133(3):303-310.
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2017
Rutkowski RE, Salemi JL, Tanner JP, Anjohrin S, Cavicchia P, Lake-Burger H, Kirby RS. Are Children Born with Birth Defects at Increased Risk of Injuries in Early Childhood? J Pediatr. Sep 2017;188:148-155 e142.
Salemi JL, Tanner JP, Sampat DP, Rutkowski RE, Anjohrin SB, Marshall J, Kirby RS. Evaluation of the Sensitivity and Accuracy of Birth Defects Indicators on the 2003 Revision of the U.S. Birth Certificate: Has Data Quality Improved? Paediatric and perinatal epidemiology. Jan 2017;31(1):67-75.
2016
Cain MA, Salemi JL, Tanner JP, Kirby RS, Salihu HM, Louis JM. Pregnancy as a window to future health: maternal placental syndromes and short-term cardiovascular outcomes. American journal of obstetrics and gynecology. Oct 2016;215(4):484 e481-484 e414.
Radcliff E, Cassell CH, Laditka SB, Thibadeau JK, Correia J, Grosse SD, Kirby RS. Factors associated with the timeliness of postnatal surgical repair of spina bifida. Child's nervous system: ChNS : official journal of the International Society for Pediatric Neurosurgery. May 14 2016.
Tanner JP, Salemi JL, Stuart AL, Yu H, Jordan MM, DuClos C, Cavicchia P, Correia JA, Watkins SM, Kirby RS. Uncertainty in maternal exposures to ambient PM2.5 and benzene during pregnancy: Sensitivity to exposure estimation decisions. Spatial and spatio-temporal epidemiology. May 2016;17:117-129.
2015
Marshall J, Salemi JL, Tanner JP, Ramakrishnan R, Feldkamp ML, Marengo LK, Meyer RE, Druschel CM, Rickard R, Kirby RS. Prevalence, Correlates, and Outcomes of Omphalocele in the United States, 1995-2005. Obstetrics and gynecology. Aug 2015;126(2):284-293.
Marshall J, Tanner JP, Kozyr YA, Kirby RS. Services and supports for young children with Down syndrome: parent and provider perspectives. Child: care, health and development. May 2015;41(3):365-373.
Radcliff E, Delmelle E, Kirby RS, Laditka SB, Correia J, Cassell CH. Factors Associated with Travel Time and Distance to Access Hospital Care Among Infants with Spina Bifida. Matern Child Health J. Oct 20 2015.
Razzaghi H, Dawson A, Grosse SD, Allori AC, Kirby RS, Olney RS, Correia J, Cassell CH. Factors associated with high hospital resource use in a population-based study of children with orofacial clefts. Birth Defects Res A Clin Mol Teratol. Feb 2015;103(2):127-143.
Rutkowski RE, Salemi JL, Tanner JP, Anjohrin SB, Correia JA, Watkins SM, Kirby RS. Improving the Completeness of Ascertainment in Florida's Birth Defects Surveillance Program: The Impact of Adding Infant Death and Emergency Department Data. Journal of registry management. Fall 2015;42(3):91-102.
Salemi JL, Tanner JP, Anjohrin SB, Rutkowski RE, Correia JA, Watkins SM, Kirby RS. Evaluating Difficult Decisions in Public Health Surveillance: Striking the Right Balance between Timeliness and Completeness. Journal of registry management. Summer 2015;42(2):48-61.
Salemi JL, Tanner JP, Sampat D, Anjohrin SB, Correia JA, Watkins SM, Kirby RS. The Accuracy of Hospital Discharge Diagnosis Codes for Major Birth Defects: Evaluation of a Statewide Registry With Passive Case Ascertainment. Journal of public health management and practice: JPHMP. Jun 29 2015.
Tanner JP, Salemi JL, Stuart AL, Yu H, Jordan MM, DuClos C, Cavicchia P, Correia JA, Watkins SM, Kirby RS. Associations between exposure to ambient benzene and PM(2.5) during pregnancy and the risk of selected birth defects in offspring. Environmental research. Oct 2015;142:345-353.
2014
Dawson AL, Cassell CH, Oster ME, Olney RS, Tanner JP, Kirby RS, Correia J, Grosse SD. Hospitalizations and associated costs in a population-based study of children with Down syndrome born in Florida. Birth Defects Res A Clin Mol Teratol. Nov 2014;100(11):826-836.
Kucik JE, Cassell CH, Alverson CJ, Donohue P, Tanner JP, Minkovitz CS, Correia J, Burke T, Kirby RS. Role of health insurance on the survival of infants with congenital heart defects. American journal of public health. Sep 2014;104(9):e62-70.
2013
Block SR, Watkins SM, Salemi JL, Rutkowski R, Tanner JP, Correia JA, Kirby RS. Maternal pre-pregnancy body mass index and risk of selected birth defects: evidence of a dose-response relationship. Paediatric and perinatal epidemiology. Nov 2013;27(6):521-531.
Dawson AL, Cassell CH, Riehle-Colarusso T, Grosse SD, Tanner JP, Kirby RS, Watkins SM, Correia JA, Olney RS. Factors associated with late detection of critical congenital heart disease in newborns. Pediatrics. Sep 2013;132(3):e604-611.
Delmelle EM, Cassell CH, Dony C, Radcliff E, Tanner JP, Siffel C, Kirby RS. Modeling travel impedance to medical care for children with birth defects using Geographic Information Systems. Birth Defects Res A Clin Mol Teratol. Oct 2013;97(10):673-684.
Kirby RS, Marshall J, Tanner JP, Salemi JL, Feldkamp ML, Marengo L, Meyer RE, Druschel CM, Rickard R, Kucik JE. Prevalence and correlates of gastroschisis in 15 states, 1995 to 2005. Obstetrics and gynecology. Aug 2013;122(2 Pt 1):275-281.
Peterson C, Dawson A, Grosse SD, Riehle-Colarusso T, Olney RS, Tanner JP, Kirby RS, Correia JA, Watkins SM, Cassell CH. Hospitalizations, costs, and mortality among infants with critical congenital heart disease: how important is timely detection? Birth Defects Res A Clin Mol Teratol. Oct 2013;97(10):664-672.
Salemi JL, Tanner JP, Bailey M, Mbah AK, Salihu HM. Creation and evaluation of a multi-layered maternal and child health database for comparative effectiveness research. Journal of registry management. Spring 2013;40(1):14-28.
2012
Radcliff E, Cassell CH, Tanner JP, Kirby RS, Watkins S, Correia J, Peterson C, Grosse SD. Hospital use, associated costs, and payer status for infants born with spina bifida. Birth Defects Res A Clin Mol Teratol. Dec 2012;94(12):1044-1053.
Salemi JL, Tanner JP, Kennedy S, Block S, Bailey M, Correia JA, Watkins SM, Kirby RS. A comparison of two surveillance strategies for selected birth defects in Florida. Public health reports (Washington, D.C. : 1974). Jul-Aug 2012;127(4):391-400.
2011
Salemi JL, Tanner JP, Block S, Bailey M, Correia JA, Watkins SM, Kirby RS. The relative contribution of data sources to a birth defects registry utilizing passive multisource ascertainment methods: does a smaller birth defects case ascertainment net lead to overall or disproportionate loss? Journal of registry management. Spring 2011;38(1):30-38.
2010
Nembhard WN, Salemi JL, Wang T, Loscalzo ML, Hauser KW. Is the prevalence of specific types of congenital heart defects different for non-Hispanic white, non-Hispanic black and Hispanic infants? Matern Child Health J. Mar 2010;14(2):184-193.
Nembhard WN, Wang T, Loscalzo ML, Salemi JL. Variation in the prevalence of congenital heart defects by maternal race/ethnicity and infant sex. J Pediatr. Feb 2010;156(2):259-264.
Salemi JL, Hauser KW, Tanner JP, Sampat D, Correia JA, Watkins SM, Kirby RS. Developing a database management system to support birth defects surveillance in Florida. Journal of registry management. Spring 2010;37(1):10-15; quiz 38-19.
Tanner JP, Salemi JL, Hauser KW, Correia JA, Watkins SM, Kirby RS. Birth defects surveillance in Florida: infant death certificates as a case ascertainment source. Birth Defects Res A Clin Mol Teratol. Dec 2010;88(12):1017-1022.
2009
Nembhard WN, Loscalzo ML. Fetal growth among infants with congenital heart defects by maternal race/ethnicity. Ann Epidemiol. May 2009;19(5):311-315.
Nembhard WN, Salemi JL, Loscalzo ML, Wang T, Hauser KW. Are black and Hispanic infants with specific congenital heart defects at increased risk of preterm birth? Pediatr Cardiol. Aug 2009;30(6):800-809.
Nembhard WN, Salemi JL, Wang T, Loscalzo ML, Hauser KW. Is the Prevalence of Specific Types of Congenital Heart Defects Different for Non-Hispanic White, Non-Hispanic Black and Hispanic Infants? Matern Child Health J. Jan 24 2009.
Salemi JL, Pierre M, Tanner JP, Kornosky JL, Hauser KW, Kirby RS, Carver JD. Maternal nativity as a risk factor for gastroschisis: A population-based study. Birth Defects Res A Clin Mol Teratol. Jul 30 2009.
2007
Nembhard WN, Salemi JL, Hauser KW, Kornosky JL. Are there ethnic disparities in risk of preterm birth among infants born with congenital heart defects? Birth Defects Res A Clin Mol Teratol. Nov 2007;79(11):754-764.
2005
Williams CA, Hauser KW, Correia JA, Frias JL. Ascertainment of gastroschisis using the ICD-9-CM surgical procedure code. Birth Defects Res A Clin Mol Teratol. Oct 2005;73(10):646-648.
2004
Hauser KW, Lilly CM, Frias JL. Florida health care providers' knowledge of folic acid for the prevention of neural tube defects. South Med J. May 2004;97(5):437-439.
2003
Williams CA, Mardon RE, Grove D, Wharton P, Hauser KW, Frias JL. Treatment of oralfacial clefts by state-affiliated craniofacial centers and cleft palate clinics. Birth Defects Res A Clin Mol Teratol. Sep 2003;67(9):643-646.