Resources

Huntington's Disease Center of Excellence at USF

Monthly HD Support Group meets the first Wednesday of each month. Meetings are for individuals with HD and family/caregivers. In-person and virtual meetings alternate every other month. In-person meetings (locations vary) are held 5:30-7:00pm, and virtual meetings are held 6:00-7:00pm. If you are interested in attending, please contact Megan Fitzpatrick at mmfitzpa@usf.edu or 813-974-0527 for more information.

Huntington Disease Society of America (HDSA)
- HDSA is a nonprofit organization dedicated to improving the lives of people affected by HD by supporting community services and education, advocacy, research, and supporting the HDSA Center of Excellence programs. For more information, visit https://hdsa.org/

HELP4HD
- HELP4HD International Inc. is a grassroots, nonprofit organization whose mission is to educate the world about Huntington’s Disease and Juvenile Huntington’s Disease. committed to education, support, advocacy and connecting individuals with community resources. They provide education, information and resources, as well as support groups, advocacy, and programs and events. For more information, visit: https://www.help4hd.org/

HD Buzz is a blog written by HD scientists covering research updates for the community: https://en.hdbuzz.net/
HDSA Trialfinder: https://hdsa.org/hd-research/hd-trial-finder/
Clinical Trials: https://clinicaltrials.gov/
If you are a healthcare entity in Florida providing care for someone affected by HD and would like to learn more about the condition, please reach out to us to discuss an in-service. Please contact our social worker at 813-974-0527 or mmfitzpa@usf.edu.