• FPQC Family-Centered Care PAIRED Toolkit (v. March 2021)

• PAIRED Key Driver Diagram
• PAIRED Pilot Quick Start Guide
• 30-60-90 Day Plan Worksheet

• Sample Plan-Do-Study-Act Cycle
• Skin to Skin Care FAQs (as of April 2021)

PAIRED Project Data Resources

• Measurement Grid (v. Feb 2021)
• Data Collection Form
• Skin-to-Skin Log

• Example "Skin to Skin" pamphlet (Joe DiMaggio). A great example of a flyer that units can use as a template to produce their own.   

• Example "Kangaroo Mother Care" pamphlet (Holtz Children's Hospital)

• Example Kangaroo Mother Care appointment card (Joe DiMaggio)

• A Preemies' Bill of Rights. Describes what care the preemie deserves. Although it is from WakeMed it was written by Read McCarthy 20 years ago after his daughter was born a preemie.  Many NICU have used this over the years and give a copy to all families on admission.  

• The Benefits of Kangaroo Care (Hand to Hold). This blog describes the benefits of Kangaroo care for families. Hand to Hold is an organization that supports NICU families during and after the NICU stay site

• Apps for NICU Families

Evidence for Skin to Skin Literature 

• Effect   of   Facilitated   Tucking   Created   with   Simulated Hands on Physiological Pain Indicators during Venipuncture in Premature Infants 
• Sobreviver (Survive) Project 
• Neonatal Skin-to-Skin Contact - Implications for Learning and Autonomic Nervous System Function in Infants With Congenital Heart Disease 
• Kangaroo Mother Care-A method for protecting high-risk low-birth-weight and premature infants against developmental delay
• Neuroprotective Core Measure 2- Partnering with Families - Effects of a Weighted Maternally-Scented Parental Simulation Device on Premature Infants in Neonatal Intensive Care  
• Parent-Training with Kangaroo Care Impacts Infant Neurophysiological Development & Mother-Infant Neuroendocrine Activity 
• The Maternal Experience of Kangaroo Holding 
• The Mood Variation in Mothers of Preterm Infants in Kangaroo Mother Care and Conventional Incubator Care 

Handouts

• Tip Sheet 10 ideas FFC Diversity Disparities (CPQCC) 

Peer-Reviewed Literature

• CPQCC Baby Monitor Study. This is a wonderful article looking at Racial and Ethnic Disparities in NICU care  
• Health Care Providers’ Perspectives of Providing Culturally Competent Care in the NICU. This article examines the experiences and perceptions of health care providers caring for new immigrant families in the NICU. 
• Parents' and nurses' experiences of partnership in neonatal intensive care units: A qualitative review and meta‐synthesis.
• Caring for Indigenous families in the neonatal intensive care unit
• When a common language is missing: Nurse–mother communication in the NICU. A qualitative study

Clinical Guidelines

• Implementing the New ANA Standard 8: Culturally Congruent Practice. This article records the history of the revised scope and standards and new Standard 8, the reasoning behind this standard and its impact on nursing practice, education, and research. The article also guides nurses in the application of Standard 8 to nursing practice and offers discussion about implementing culturally congruent practice through the nursing process. 

Evidence-based Literature:

• Guidelines for presence of families IPFCC - A Template: This is a great article that provides a look at the methods to identify needs from the family and patient perspective in perinatal care

• Bringing Depth and Meaning to Perinatal Quality Improvement by Partnering With Patients: This is a great article that provides a look at the methods to identify needs from the family and patient perspective in perinatal care. (PQCNC)

• Family Presence in the NICU: Constraints and Opportunities in the COVID-19 Era (Bainter et al)

• The Value of Family Advisors as Coleaders in Pediatric Quality Improvement Efforts: A Qualitative Theme Analysis (Ramazani et al)

Policies & Recommendations:

• Kangaroo Mother Care Policy: This is the Holtz Children's Hospital Policy on Kangaroo Mother Care and is an example that other units can utilize to create their own.

• Skin to Skin Care for the Newborn Clinical Guidelines (The Royal Children's Hospital of Melbourne). This is well done and evidence-based clinical guideline. This guideline provides the benefits criteria and procedure to effectively and safely promote skin to skin care to infant and parents. It is a wonderful reference for NICUs to use to develop their own policy/procedure for skin to skin care.

• Recommendations for involving the family in the Developmental Care of the NICU baby. J of Perinatology. This article describes the recommendations for assuring that families are involved in the care of their babies   Their are specific policies recommendations contained in the article.

Other Resources and Support:

• Family-Integrated Care. This website introduces the concept of Family Integrated care (FICare) to families and health care providers. FICare is a model that integrates families as partners in the NICU care team, and provides a structure that supports the implementation of family-centered care. This website provides helpful tools and resources to support this model. 

• The NICU Parent Network is a collaborative of NICU Support Organizations led by NICU Parent Professionals.  

• (Video) UCSF NICU: How to do a standing transfer when your baby is on a respirator
• Video demonstration of the performance of Skin to Skin Care. These videos demonstrate how to perform Skin2Skin Care. They demonstrate how to standing transfer and other items to teach parents. 

• Kangaroo Care for Infants on HFOV (slide set)
• Key Points for Kangaroo Care for Infants on HFOV

Care Conference:

• Interdisciplinary Family Conferences to Improve Patient Experience in the Neonatal Intensive Care Unit. This article describes one unit's approach to enhance patient experience through the family care conference. 
• NICU Family Care Conferences (UAMS)
• Family Conferences in the Neonatal Intensive Care Unit: Observation of Communication Dynamics and Contributions. Clinicians in the neonatal intensive care unit (NICU) must engage in clear and compassionate communication with families. Empirical, observational studies of NICU family conferences are needed to develop counseling best practices and to train clinicians in key communication skills. This article describes a pilot study to record and analyze how interdisciplinary NICU clinicians and parents navigate difficult conversations during NICU family conferences  

Medical Education:

• Audio recordings of consultations with doctors for parents of critically sick babies
• It’s All in the Delivery: Improving Healthcare Starting With a Single Conversation, by Anthony Orsini Orlando, FL: West Essex Press. 2020. Communicating with parents and families is an integral part of working in NICU. Developing a trusting relationship with families based on mutual respect is critical to the care we provide.  All in the Delivery is a new book focusing on the art and science of healthcare communication. This is a great resource both for antenatal counseling and for the complex care conferences. 

Antenatal Counseling:

• Counselling and management for anticipated extremely preterm birth. This article is a revised position statement from the  Canadian Paediatric Society, Fetus and Newborn Committee. The article proposes using a prognosis-based approach to the management of extremely preterm infants.  A framework for determining the prognosis-based management option(s) to present to parents when initiating the decision-making process is also discussed.    
• Counseling parents at risk of delivery of an extremely premature infant: Differing strategies. This article  explores expert neonatologists’ views on  decision-making processes when deciding whether to resuscitate infants born extremely preterm   and their own roles in counseling parents.
• Counselling about the Risk of Preterm Delivery: A Systematic Review This is a systematic review that discusses the research gap in the area of counselling for preterm delivery risk. The model of Shared decision making is discussed as effective but more research is needed.