Scholarly Activity

Center members have made significant contributions to the growing literature on end-of-life and palliative care, both in collaboration with other Center members, as well as with researchers from other universities and provider agencies.

The following publication by Center members Lori Roscoe, PhD; Ronald Schonwetter, MD; and Kathleen Egan, MA, BSN, CHPN describes the history of The Center:

Creating An Academic-Community Provider Partnership in Hospice, Palliative Care & End-of-Life Studies

Center members have developed particular expertise in the following topics:

  • Cancer Care
  • Caregiving at End-of-Life
  • Decision Making at End-of-Life
  • Dementia Care
  • Education in End-of-Life Care
  • Long-term Care and End-of-Life
  • Pain and Symptom Management/Quality of Life
  • Physician-Assisted Suicide and Euthanasia
  • Research Methodology in End-of-Life Studies

O’Connor N, Hu R, Harris P, Ache K, Harrold J, Casarett D. Hospice Admissions for Cancer Within the Last Three Days of Life: Independent Predictors and Implications for Quality Measures. Submitted 12/13 to Journal of Clinical Oncology.

Brown CS, Baker TA, Aiken-Morgan A, Mingo C, Harden JT, Phillips K, Whitfield KE (2014). Reviewing Our Roots: Blacks in Gerontology. The Gerontologist, 54(1), 108-116. (IF=2.28; 5 yr=3.10)

Baker TA, O’Connor ML, & Krok JL (2013). Experience and knowledge of pain management in patients receiving outpatient cancer treatment: What do older adults really know about their cancer pain? Pain Medicine, 15(1), 52-60. (IF=2.45; 5 yr=2.69)

Baker TA, Krok JL (2013) The influence of personality on reported pain and self-efficacy for pain management in older cancer patients. Journal of Health Psychology (Epubahead of print). (IF=1.88; 5 yr=2.18)

Baker TA, O’Connor ML, Roker R, & Krok JL (2013) Satisfaction with pain treatment in older cancer patients: Identifying variants of discrimination, trust, communication, and self- efficacy. Journal of Hospice & Palliative Nursing, 15(8), 455-463. PMID:24363611

Krok JL, Baker TA, & McMillan S (2013) Age differences in the presence of pain and psychological distress in younger and older cancer patients. Journal of Hospice and Palliative Nursing, 15(2), 107-113. (IF=.727)

Grubert E, Baker T, McGeever K, & Shaw B (2013) The role of pain in understanding racial/ethnic differences in physical activity among older adults. Journal of Aging & Health, 25(3), 405-421. PMID:23271728

Boaz T, Becker M, Andel R, Van Dorn R, Choi J, & Sikirica M (2013) Risk factors for early readmission to acute care for persons with schizophrenia treated with antipsychotic medications. Psychiatric Services, 64(12), 1225-1229.

Kip K, Haynes D, Becker M (2013) Impact of parental substance use problems on the 1-year incidence of child maltreatment and juvenile delinquency. Mental Health Law & Policy Faculty Publications. Paper 615.

Carrion IV, Nedjat-Haiem FR, Martinez TD, & Castañeda H (2013) An Exploratory Study of Advance Care Planning among Colombians, Mexicans, and Puerto Ricans with a Cancer Diagnosis. Supportive Cancer in Care, 21 (5):1233-1239.

Nedjat-Haiem FR, Carrion IV, Cribbs K, & Lorenz K (2013) Advocacy at the End-of-Life: Meeting the Needs of Vulnerable Patients. Social Work in Health Care, 52(6):558-77.

Carrion IV, Nedjat-Haiem FR, & Marquez DX (2013) Examining Cultural Factors that Influence Treatment Decisions: A Pilot Study of Latino Men with Cancer. Journal of Cancer Education, 28, (4), 729-737.

Nedjat-Haiem FR, Carrion IV, Ell K, & Palinkas L (2013) Latinas’ Experiences With Advanced Cancer. OMEGA: Journal of Death and Dying, 67 (1-2):167-174.

Park NS, Dobbs D, Carrion IV, Young T, Salmon J, & Roff LL (2013) Social Relationships of African American and Hispanic Older Assisted Living Residents: Exploring  the Role of Race and Ethnicity. Journal of Housing for the Elderly, 27(3), 1-23.

Harris P, Craig T, Teno J, Casarett D (2013) What can hospice patients and families expect? A prospective cohort study of trajectories of decline. Journal of the American Geriatrics Society.

Casarett D, Harrold J, Harris P, Craig T, Farrington S, Smither E, Ache K, Ostrov M, Teno J (2013) Does continuous hospice care help patients remain at home? Annals of Internal Medicine.

Dillon PJ, & Basu A (2013) HIV/AIDS and minority men who have sex with men: A meta-ethnographic synthesis of qualitative research. Health Communication.

Dillon PJ, & Jenkins JJ (2013) Improving students’ formal writing: The IDOL writing device. College Teaching.

Dillon PJ (2013) Challenges and opportunities: Educating medical trainees to disclose medical errors. Florida Communication Journal.

Meng H, Dobbs D, Wang S, & Hyer K (2013) Hospice use and public expenditures at the end of life in assisted living residents in a Florida Medicaid waiver program. Journal of the American Geriatrics Society, 61(10), 1777-1781. doi: 10.1111/jgs.12459.

Park NS, Dobbs D, Carrion IV, Young TL, Salmon JR, & Roff LL (2013) Social relationships of African American and Hispanic older assisted living residents: Exploring the role of race/ethnicity. Journal of Housing for the Elderly, 27(4), 369-391. doi: 10.1080/02763893.2013.813427

Holup AA, Dobbs D, Hyer K, & Meng H (2013) Facility characteristics associated with the use of electronic health records in residential care facilities. Journal of the American Medical Informatics Association, 20(4), 787-791. doi: 10.1136/amiajnl-2012-001564

Black K, & Dobbs D (2013) Community-dwelling older adults’ perceptions of dignity: Core meanings, supports, challenges, and opportunities. Ageing & Society. Advance online publication. doi:10.1017/S0144686X13000020

Casarett DJ, Farrington S, Oldanie B, Slattery J, Green D, Craig T (2013) Impact of the face-to-face requirement. Journal of Palliative Medicine.

Casarett DJ, Farrington S, Oldanie B, Slattery J, Craig T, Teno J (2013) CHOICE: Coalition of Hospices Organized to Investigate Comparative Effectiveness. Current Opinions in Supportive Oncology.

Frahm K A, Brown L M, & Hyer K (2013) Racial Disparities in Receipt of Hospice Services Among Nursing Home Residents. American Journal of Hospice and Palliative Medicine, xx(x), 1-5.

Roth DL, Haley WE, Hovater M, Perkins M, Wadley VG, & Judd S (2013) Family caregiving and all-cause mortality: Findings from a population-based propensity-matched analysis. American Journal of Epidemiology, 178, 1571-1578. DOI: 10.1093/aje/kwt225

Park NS, Jang Y, Lee BS, Ko JE, Haley WE, & Chiriboga DA (2013) Aempirical typology of social networks and its association with physical and mental health: A study with older Korean immigrants. The Journals of Gerontology Series B: Psychological Sciences. doi:10.1093/geronb/gbt065

Allen JY, Haley WE, Small BJ, Schonwetter RS, & McMillan SC (2013) Bereavement among hospice caregivers one year following loss: Predictors of grief, complicated grief, and symptoms of depression. Journal of Palliative Medicine, 16, 745-751. doi:10.1089/jpm.2012.0450

Perkins M, Howard VJ, Wadley VG, Crowe M, Safford MM, Haley WE, Howard G, & Roth DL (2013) Caregiving strain and all-cause mortality: Evidence from the REGARDS study. Journals of Gerontology Series B: Psychological Sciences and Social Sciences,68, 504-512. doi:10.1093/geronb/gbs084

McMillan SC, Small BJ, Haley WE, Zambroski C, & Buck HG (2013) The COPE intervention for caregivers of patients with heart failure: An adapted intervention. The Journal of Hospice and Palliative Nursing, 15, 196-206. DOI: 10.1097/NJH.0b013e31827777fb

Clay OJ, Grant JS, Wadley VG, Perkins MM, Haley WE, & Roth DL (2013) Correlates of health related quality of life in African American and Caucasian stroke caregivers. Rehabilitation Psychology, 58.28-35. DOI: 10.1037/a0031726.

Park NS, Jang Y, Lee BS, Haley WE, & Chiriboga DA (2013) The mediating role of loneliness in the relation between social engagement and depressive symptoms among older Korean Americans. The Journals of Gerontology, Series B: Psychological Sciences and Social Sciences, 68, 193-201. doi:10.1093/geronb/gbs062.

Mingo CA, McIlvane JM, Jefferson M, Edwards LJ, & Haley WE (2013) Preferences for arthritis interventions: Identifying similarities and differences among Blacks and Whites with osteoarthritis. Arthritis Care and Research, 65, 203-211. DOI 10.1002/acr.21781

Grant JS, Keltner NL, Clay OJ, Haley WE, Wadley VG, Perkins MM, Roth DL (2013) Does caregiver well-being predict stroke survivor depressive symptoms? A mediation analysis. Topics in Stroke Rehabilitation, 20, 44-51. Doi 10.1310/tsr2001-44

Meng D, Dobbs D, Wang S, & Hyer K, (2013) Hospice use and public expenditures at the end of life among assisted living residents in a Florida Medicaid waiver program. Journal of the American Geriatrics Society, 61(10), 1777–1781. doi:10.1111/jgs.12459

Chisholm L, Weech-Maldonado R, Laberge A, Lin FC & Hyer K (2013) Nursing home quality and financial performance: Dose racial composition of residents matter? Health Services Research. doi:10.1111/1475-6773.12079.

Holup A, Dobbs DJ, Meng H, & Hyer K (2013) Facility characteristics associated with the use of electronic health records in residential care facilities. Journal of the American Medical Informatics Association, 20(4), 787-791. doi:10.1136/amiajnl-2012-001564.

Bowblis JR & Hyer K (2013) Nursing home staffing requirements and Input substitution: Effects on Housekeeping, Food Service, and Activities Staff. Health Services Research, 48(4), 1539-1550. doi:10.1111/1475-6773.12046

Frahm KA, Alsac-Seitz B, Mescia N, Brown LM, Hyer K, Liburd D, Rogoff D (2013) Florida Public Health Training Center: Evidence-Based Online Mentor Program, Journal of Continuing Higher Education, 61, 1-8.

Smith K, Castle N, & Hyer K (2013) Implementation of quality assurance and performance improvement programs in nursing homes: A brief report. Journal of the American Medical Directors Association, 14(1), 60-61. doi:10.1016/j.jamda.2012.09.010.

Hyer K, Thomas KS, Harman J, Johnson CE & Weech-Maldonado R, (2013) Do Medicaid incentive payments boost quality? Florida’s direct care staffing adjustment program. Journal of Aging and Social Policy, 25(1), 65-82. doi:10.1080/08959420.2012.705629

Thomas KS, Mor V, Tyler DA, & Hyer K, (2013) The relationship among licensed nurse turnover, retention, and rehospitalization of nursing home residents. The Gerontologist, 53(2), 211-221. doi:10.1093/geront/gns082

Aguado Loi C, Baldwin J, McDermott R, McMillan SC, Martinez-Tyson D, Yampolskya S, VandeWeerd C (2013) Risk factors associated with increased depressive symptoms among Latinas diagnosed with breast cancer within 5-years of survivorship. Psycho-Oncology, electronic version.

Athilingam P, D’Aoust RF, Zambroski C, McMillan S, & Sahebzamani F(2013) Predictive Validity and Utility of NYHA and ACC/AHA classification of Physical and Cognitive Functioning in Heart Failure. International Journal of Nursing Science, 3, 22-32. DOI: 10.5923/j.nursing.20130301.043

McMillan SC, Tofthagen C, Small BJ, Karver S & Craig D. (2013) Trajectory of Medication-induced Constipation. Oncology Nursing Forum, 40(1), (electronic version).

Buck HG, Zambroski CH, Garrison C. & McMillan SC. (2013) "Everything They Were Discussing, We Were Already Doing": Hospice Heart Failure Caregivers Reflect on a Palliative Caregiving Intervention. Journal of Hospice and Palliative Nursing,15(4),218-224.

McMillan SC, Small BJ, Haley WE, Zambroski CH & Buck, HG. (2013) The COPE Intervention for Caregivers of Patients with Heart Failure: An Adapted Intervention. Journal of Hospice and Palliative Nursing,15 (4), 196-206.

Allen J., Haley WE, Small BJ & McMillan SC. (2013) Bereavement among Hospice Caregivers of Cancer Patients One Year Following Loss: Predictors of Grief, Complicated Grief, and Symptoms of Depression. Journal of Palliative Medicine, 16(7), 1-6.

Wilson J, & McMillan SC, (2013) Symptoms Experienced by Hospice Patients with Heart Failure. Journal of Hospice and Palliative Nursing, 15(1), 16-22.

Krok J, Baker T, & McMillan SC (2013) Sexual activity and body image: examining gender variability and the influence of psychological distress in cancer patients. Journal of Gender Studies, DOI:10.1080/09589236.2012.708828.

Meng H, Dobbs D, Wang S, Hyer H (2013) Hospice Use and Public Expenditures at the End of Life among Assisted Living Residents in a Florida Medicaid Waiver Program. Journal of the American Geriatrics Society. 61(10):1777-1781.

Holup MA, Dobbs D, Meng H, Hyer K (2013) Facility Characteristics Associated with the Use of Electronic Health Records in Residential Care Facilities. Journal of American Medical Informatics Association; 20(4):787-791.

Friedberg F, Napoli A, Coronel J, Adamowicz J, Seva V, Caikauskaite I, Nagn M. Chang J, Meng H (2013) Chronic Fatigue Self-Management in Primary Care: A Randomized Trial. Psychosomatic Medicine. 75(7):650-7.

Meng H, King-Kallimanis B, Gum A, Wamsley B (2013) Measurement Bias of the SF-36 Health Survey in Older Adults with Chronic Conditions. Quality of Life Research. 22(9):2359-2369.

Bowblis JR, Meng H, Hyer K (2013) Rural-urban disparities in nursing home quality: the case of facility-acquired contractures. Health Services Research. 48(1):47-69.

Miladinovic B, Mhaskar R, Kim S, Schonwetter R, Djulbegovic B, (2013) A Flexible Alternative to the Cox Proportional Hazard Model for Prognosticating Palliative Patient Survival. PLoS ONE 7(10): e47804. doi:10.1371/journal.pone.0047804.

Miladinovic B, Mhaskar R, Kumar A, Kim S, Schonwetter R, Djulbegovic B (2013) External Validation of a Web-Based Prognostic Tool for Predicting Survival for Patients in Hospice Care, Journal of Palliative Care, 29(3):140-146.

Allen J, Schonwetter R, Haley B, McMillan S, Small B. (2013) Bereavement among Hospice Caregivers of Cancer Patients One Year Following Loss: Predictors of Grief, Complicated Grief and Symptoms of Depression, Journal of Palliative Medicine. 16(7):745-751.

Roscoe LA, Tullis JA, Reich RR, & McCaffrey JC (2013) Beyond good intentions and patient perceptions: Competing definitions of effective communication in head and neck cancer care at the end of life. Health Communication, 28, 183-192.

Cohen MB, Stewart JT (2013) Treatment of post-electroconvulsive therapy agitation with dexmedetomidine. J ECT 29:e23-e24.

Stewart JT, Sheyner I, Lewis DC, George LV, Mattox KM, Stover KT. (2013) Involuntary weight loss after switching acetylcholinesterase inhibitors. Ann Long Term Care. 21(3):32-34.

Vidal E, Stewart JT, Catalano G. (2013) A case of corticosteroid-responsive depression. Psychosomatics. 54:395-397.

Poetter CE, Stewart JT. (2013) Treatment of clozapine-induced constipation with bethanechol. J Clin Psychopharmacol. 33:713-714.

Hervey WM, Stewart JT, Catalano G. (2013) Diagnosis and management of periodic catatonia. J Psychiatry Neurosci. 38:E7-E8.

Jacobsen PB, Phillips KM, Jim HSL, Small BJ, Faul LA, Meade, CD, Thompson L., et al. (2013) Effects of self-directed stress management training and home-based exercise on quality of life in cancer patients receiving chemotherapy: a randomized controlled trial. Psycho-Oncology. 22:6 1229-35.

Volicer L. (2013) Palliative care in dementia. Progress in Palliative Care. 21:146-150.

Galindo-Garre F, Hendriks SA, Volicer L, Smalbrugge M, Hertogh CM, Van der Steen JT. (2013) The Bedford Alzheimer Nursing-Severity Scale to assess dementia severity in advanced dementia. Am J Alzheimers Dis Other Demen.

Fullarton J, Volicer L. (2013) Reductions of antipsychotic and hypnotic medications in Namaste Care. J Am Med Dir Assoc.14:708-709.

Volicer L, Frijters DH, Van der Steen JT. (2013) Apathy and weight loss in nursing home residents: longitudinal study. J Am Med Dir Assoc.14:417-420.

Erel M, Shapira Z, Volicer L. (2013) Behavioral problems of seniors in an emergency department. J Emerg Med 2013 Jul;45(1):13-18.

Vandervoort A, Van den Block L, Van der Steen JT et al. (2013) Nursing Home Residents Dying With Dementia in Flanders, Belgium: A Nationwide Postmortem Study on Clinical Characteristics and Quality of Dying. J Am Med Dir Assoc.

Volicer L. Response to Sheehan, B. (2013) Assessment scales in dementia. Ther Adv Neurol Disord 5: 349-358. Ther Adv Neurol Disord. 6:337-338.

Volicer L, Van der Steen JT, Frijters DH (2013) Involvement in activities and wandering in nursing home residents with cognitive impairment. Alzheimer Dis Assoc Disorder. 27:272-277.

Wang H, Skinner CS, Champion VL, Springston J, Perkins SM, Tong Y, Krier C, Gebregziabher N, Christy S, & Rawl SM (2013) Predictors of Stage of Adoption for Colorectal Cancer Screening Among African American Primary Care Patients. Cancer Nursing. DOI: 10.1097/NCC.0b013e3182a40d8d

Wang H, Weaver MT, Keck JF, Mikesky A, Bunnell K, Buelow J, & Rawl SM (2013) Shoulder Pain, Functional Status, and Health-related Quality of Life After Head and Neck Cancer Surgery. Rehabilitation Research and Practice. vol. 2013, Article ID 601768. DOI:10.1155/2013/601768.